Thursday, February 28, 2013
Rare Disease Day
I meant to get this up sooner...story of my life! Anyway, it's RARE DISEASE DAY! Today you can 'wear that you care' by wearing your JEANS. We all have genes, and we all have jeans. It's a simple way to bridge the gap between those living with rare disease and those who are educating themselves about it. Emma had Batten Disease. It is rare but not for Missy's son, Will and Ramee's daughter, Mable. There are hundreds of others who have been affected too. Please do what you can to find a cure. Tomorrow is Emma's birthday. Won't you consider giving a donation to BDSRA or Beyond Batten Disease Foundation today in her honor?